Hormones, Pregnancy and Hidradenitis Suppurativa

Hormones, Pregnancy and Hidradenitis Suppurativa

Many women experience their first HS lesions during pregnancy or right after delivery. Also, some women experience a worsening of HS around these times. Watch to find out why this may be and learn safe ways of managing HS if you’re pregnant, breastfeeding or planning to become pregnant.

 

 

Disclaimer: This article is for informational purposes only and is not a substitute for the professional advice of your physician or other licensed health care provider. Never avoid, disregard or delay seeking professional medical advice, or change any of your prescribed medical treatments because of something you have read on this blog. If you try any therapies or recommendations discussed on this blog, you do so at your own risk.

 

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16 responses to “Hormones, Pregnancy and Hidradenitis Suppurativa”

  1. Hi,

    I am 36, had HS for 5 yrs now. Started on one side of my groin and slowly spread all the way to the other. I just delivered my baby, and HS got worse (new flare ups and tunnels) all over my private area and armpit during pregnancy. Things got even worse since 2 weeks postpartum.
    Im nursing my baby.
    My ob-gyn put me on clindamycin for 3 months. But, this antibiotic never got any impact on HS flare ups for me.
    Any suggestions?
    Im really struggling with pain and depression as Im not even able to care for my baby as I want to.
    Thank you.

    • I’m so sorry, Arthi! I can only imagine how painful this is for you – both physically and emotionally. Since you’re nursing you have to be very careful with what goes into your body and on your skin, but perhaps you could consult with your doctor about following a nutrient-rich, anti-inflammatory diet. We have many great recipes in our Nourish eCookbook. Also, you could ask your doctor about using topical Manuka honey (MANUKApli). We’ve seen incredible results with it, and it’s quite safe and gentle for most people. I hope you feel better soon! <3

      • Thanks for your response.
        I have one big question in my head – roughly how long does it take for HS to start improving postpartum?

  2. I have HS in left buttocks a fistula leaking yellow discharge and blood constantly. I have had three excision surgeries of area but keeps coming back. It is 2cm away from rectum in perineum area. Can this HS lesion cause a miscarriage or infection in the womb?.Can it reach the baby & is all yellow discharge infectious?

    • Hi, Shelly –
      I am so sorry that you’re having to deal with something so painful! In general, yes – fistulas can become very serious if infectious material spreads to other parts of the body. Sometimes infections can become systemic. Yellow discharge may or may not be a sign of infection. If it’s a milky yellow, that speaks more to an infection. I urge you to consult with your physician for the best course of action; please don’t delay! I’m sending lots of positive thoughts your way.❤️

    • Hi, Fiona –
      HS doesn’t cause infertility or early menopause directly, but women with HS are more likely to have thyroid issues or polycystic ovary syndrome (PCOS). Both of these conditions can impact fertility. What these conditions have in common with HS is that they’re rooted in inflammation (and very commonly insulin resistance, too). Be sure to join our Help for HS newsletter if you haven’t done so already, because we take you step-by-step through all of the important changes that you can make to restore your health! https://bit.ly/3aidPpg

      • Hello I am 29 years old I am currently 8 weeks pregnant and have been dealing with HS since I was 21 .i have been considered by my obgyn as a high risk pregnancy . I have noticed that being pregnant has made it harder for my flare ups to calm down..i want to thank u for this very informative video as I learned alot today from it ..

        • Thank you for sharing your experience, Kimberly. Yes — some women experience improvements during pregnancy, while others may experience HS for the very first time or flare badly. I’m so glad that you found this video helpful. Best of luck to you, and I’m sending you wishes for a healthy baby (and a healthy YOU!).

      • Can you get fmla with this disease ? My doctor told me my prolactin levels are high and could have a tumor in my brain because of this. I was misdiagnosed and never knew what I had for 10 years! And now this ….

        • Hi, Genesis –
          I’m sorry to hear that you struggled for so long without getting answers. FMLA covers many things, and it really depends on your company’s policies. Companies with fewer than 50 employees do not participate with FMLA. However, if your condition prevents you from working altogether, you may be eligible for disability benefits through the Social Security Administration. I wish for your complete healing and recovery. <3

    • Hi, Ashley –
      Yes; women with HS can still get pregnant and deliver healthy babies! Just know that women with HS are more likely to have thyroid issues or polycystic ovary syndrome, and those conditions can make it harder to get pregnant. It’s always a good idea to have a thorough lab workup for blood sugar, insulin, thyroid markers, and sex hormones. ~Dr. B

  3. Hi,

    I have HS and I have plan to be pregnant. What should I consider? previously I’ve used Tetracyclin and Clindomycin for the treatment, didn’t work. So I tried injection and it worked but then after 6 months it started again. Can I take injection during pregnancy?

    Best Regards,
    Azita

    • Yes – it is considered safe to take biologic injections during pregnancy, as long as your doctor approves. We have patients who have used them during pregnancy and breastfeeding. Best of luck to you! 🙂

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